Understanding Credit and Debt for Individuals With an Intellectual or Developmental Disability

Financial independence can be difficult to achieve for the more than 6 million people in the United States who have intellectual or developmental disabilities (IDDs), according to Disability Justice. People with developmental disabilities may have less access to banking products or may lack an understanding of credit and debt.

Despite the difficulties, people with IDDs can build their money management skills. There are available resources and strategies for guarding against fraud, accessing credit, and improving financial literacy and empowerment.

People with intellectual and developmental disabilities may have difficulty establishing good credit due to low income or unemployment. Many face discrimination that keeps them from accessing credit lines, such as bank loans. Some people with IDDs also lack financial literacy or the experience to make sound spending decisions. As a result, they may be at greater risk for having higher levels of debt.

Anyone can fall victim to credit card scams and fraud, but people with IDDs may be especially susceptible. Scammers may take advantage of isolation, limited financial literacy, or cognitive impediments. From caregivers who may capitalize on their role as trusted helpers to strangers impersonating government agencies, there are many types of credit card fraud to avoid.

Good credit is key to getting college loans, car leases, mortgages, rental apartments, and even jobs or cell phone contracts. But 31% of people with disabilities report having bad credit. People with low or no credit often can’t get financial products that make it easier to absorb unexpected or large expenses. If they do get credit, they typically pay higher interest rates.

• Difficulties establishing credit history: Building good credit takes time and requires that you make timely payments on a credit card or loan. But if you can’t get a credit card or a loan because you don’t have sufficient income or assets, it can be hard to build a credit history.
• Less access to loans: People with disabilities are approximately half as likely as people without disabilities to have a student loan. They’re also more likely than people without disabilities to feel discouraged from applying because they assume they will be denied.
• Greater likelihood of being unbanked: People with disabilities are three times more likely than people without disabilities to be unbanked, which means they don’t have a checking or savings account. Being unbanked can mean that someone has insufficient resources to warrant a bank account or it can suggest barriers to economic inclusion.
• Reliance on alternative financial services: According to the Federal Deposit Insurance Corporation (FDIC), one-third of people with disabilities use alternative financial services such as payday loans or prepaid cards. These tools can be costly and damaging to credit scores.

Understanding how to manage money responsibly can prevent bad habits, like taking on too much debt or failing to make payments on time. Those bad habits can leave you with few options other than costly payday loans or unregulated financial services.

• Making minimum payments: Making at least the minimum payment is essential to maintaining or building good credit. But making the minimum payment leaves you with credit card balances. You pay interest rates on the balance, which makes all your purchases effectively more expensive. Lenders look at overall credit utilization, so keeping balances low is important to getting approved for future credit.
• Not making a budget: A budget is a way to plan ahead and set limits on spending based on your income. Without a budget, it may be hard to know what you can afford to spend and when you can get into trouble by overspending.
• Impulse spending or adding to current debt: If you spend more than you have, you can get into financial trouble. If you’re already in debt, making a big purchase can dig you deeper into the hole.
• Maxing out credit card balances: Overall credit utilization, which is the amount of credit you use compared to how much credit you have, should be as low as possible. Maxing out credit cards makes your utilization high, which can hurt your credit score.
• Missing loan or credit card payments: Lenders look for reliable borrowers and missing payments make it harder to get approved for credit in the future.
• Ignoring your credit score: Your credit score can make the difference between being able to get a job, an apartment or a cell phone contract, let alone a loan or credit card with favorable terms. But credit bureaus don’t always have accurate information. Not checking credit reports can allow mistakes to linger.

Financial empowerment can seem elusive for some people with IDDs, but many can achieve a level of financial competence and independence with the support of others.

Parents, guardians, caregivers, and other trusted allies can help people with IDDs develop financial literacy and gain greater financial independence. Being an ally to someone with an IDD may also involve advocating for them and helping them avoid being taken advantage of.

• Assess capabilities: People with developmental disabilities have differing degrees of cognitive ability, which may affect their capacity to manage finances. Allies should objectively and realistically assess each individual’s capabilities to understand what aspects of financial management the person with a disability can handle.
• Don’t overstep: It may be tempting for family members or caregivers to take charge of financial matters for a person with an intellectual disability, especially if they’re helping manage other aspects of the person’s life. But that may not be necessary or ultimately beneficial. Allies should discuss how to be helpful, rather than intrusive.
• Create limitations: People with IDDs may benefit from spending limits on credit cards or prepaid cards which prevent overspending. Alternatively, people with disabilities can become authorized users on a caregiver’s credit card or bank account. This approach can give the family member or caregiver greater visibility and control over someone’s finances, although it can also make the caregiver liable if something goes wrong.
• Build independence: Helping people learn the basics of financial management can be a way to foster greater independence in other spheres of life.

Complex financial education for people with IDDs may be unrealistic, but tailoring lessons to an individual’s abilities can help build a foundation of financial literacy. Basic lessons such as how to find a price tag, write a check, or review the balance on a prepaid credit card can be a start.

Adults with developmental disabilities may not be able to make decisions for themselves, in which case parents or another trusted adult should establish guardianship or conservatorship. The process varies by state, but generally involves petitioning a court to appoint a guardian.

Guardianship can substantially limit a person’s autonomy. For people with less severe disabilities who may need or want help managing their financial decisions, a power of attorney may be more appropriate. Establishing a power of attorney involves engaging a lawyer or an online legal service and signing a legal document. The person appointing the power of attorney must be 18 years or older and legally competent.

Organizations can help parents, guardians, and caregivers to support their loved ones. Many national IDD organizations have a network of local partners.

• FDIC Money Smart Alliance: The FDIC lists nearly 1,300 local organizations that deliver its Money Smart financial education curriculum or train others to teach it. Alliance members include federally insured financial institutions, nonprofit organizations, schools, and local, state, and federal agencies.
• State Consumer Protection Agencies: Every state has a Consumer Protection Office that fields complaints and investigates violations of consumer laws. Protection agencies typically provide educational materials and advocate for consumer rights in a range of sectors.
• The Arc: The Arc is a national community-based organization that advocates for and serves people with intellectual and developmental disabilities and their families. The Arc works with 700 state and local chapters nationwide.
• Autism NOW: Operated by The Arc and funded by the Administration on Intellectual and Developmental Disabilities, Autism NOW is a national resource center for people with Autism Spectrum Disorders (ASD) and other developmental disabilities. Autism NOW publishes an extensive list of resources in every state for people with IDDs.

Several important laws protect the rights of people with intellectual and developmental disabilities:

• The Rehabilitation Act of 1973 protects people with disabilities against discrimination in federally funded programs, including universities.
• The Americans with Disabilities Act (ADA) of 1990 prohibits discrimination in employment, state-funded programs, public transportation and other public spheres on the basis of disability.
• The Developmental Disabilities Assistance and Bill of Rights Act (DD Act) of 2000 was designed to ensure people with developmental disabilities can get individualized and community services.

Laws also require someone to have a certain mental capacity to enter into a contract, including credit card agreements. Due to those stipulations, someone who enters into a credit or loan agreement without such a capacity may be protected from creditors. Government income, such as Social Security disability benefits, which many people with IDDs get, is also protected from creditors and debt collectors.

When people get into trouble with debt, it can feel like there’s no way out. Sometimes creditors will negotiate a payment plan, but there are also other options to cope and manage debt.

• Credit counseling can help people in debt understand financial management and make a plan to get out of debt.
• Debt management programs typically require the borrower to deposit money with a credit counseling organization.
• Debt settlement programs usually negotiate with creditors on behalf of the borrower to lower the total amount of debt. The remaining debt can usually be paid in monthly installments to the debt settlement company.

Check with your state attorney general or local consumer protection agency to make sure any assistance program you choose is reputable.

• Federal Trade Commission (FTC): The FTC offers helpful consumer information about credit counseling and debt relief programs. The information is a good way to understand debt management options and learn how to find a trustworthy service.
• Consumer Education Services Inc. (CESI): CESI is a nonprofit organization dedicated to helping people live debt-free. Though not specifically focused on consumers with developmental disabilities, CESI offers credit counseling, bankruptcy counseling, debt relief support, and financial education.

Many advocacy and support organizations are available to help increase financial empowerment among people with developmental disabilities.

• National Disability Institute: The National Disability Institute is dedicated to improving financial wellness for people with disabilities. It offers financial education resources and provides counseling.
• National Association of Councils on Developmental Disabilities: The NACDD is an association of 56 Councils on Developmental Disabilities across the U.S. Its financial literacy initiative is a collaborative effort across member councils and other organizations to support financial independence for people with developmental disabilities.
• Consumer Financial Protection Bureau (CFPB): The CFPB is a federal agency that enforces consumer finance rules and empowers consumers to take control of their economic lives. Consumers who have trouble with a financial product or service can file a complaint with the CFPB, which will investigate and try to resolve the issue.
• Autistic Self-Advocacy Network: The Autistic Self-Advocacy Network (ASAN) is a national, nonprofit grassroots disability rights organization run by and for autistic people. Its resources include the Roadmap to Transition: A Handbook for Autistic Youth Transitioning to Adulthood, which offers young people information about important financial matters such as employment and health insurance.
• U.S. Department of Labor Office of Disability Employment Policy: The U.S. Department of Labor Office of Disability Employment works with other federal agencies to strengthen financial education, and it lists tax incentives and programs to help people with disabilities.
• FDIC Money Smart Program: From the Federal Deposit Insurance Corporation (FDIC), Money Smart is a financial education program that teaches financial skills to people at various ages and stages and shows people how to use banking services, create financial stability and build financial confidence.
• ABLE National Resource Center: ABLE accounts are tax-advantaged savings accounts for people with disabilities and their families to save money for qualified disability expenses. The ABLE National Resource Center (ABLE NRC) is a nonprofit organization focused on providing information and guidance on ABLE accounts.
• National Council on Disability (NCD): NCD is a federal agency responsible for advising the president, Congress and other federal agencies on disability policy, programs, and practices. NCD convenes stakeholders, analyzes data, identifies solutions, and provides tools to advance policies and programs that support people with disabilities. NCD publishes financial assistance resources, including publications about the economic rights of people with disabilities, federal policies to counteract disincentives to work and strategies to expand employment and economic self-sufficiency among people with disabilities.